dblog week 2013: share and don’t share

May 13, 2013

diabetes blog week 2013

Hey, it’s dblog week again! I’ve come out of hiding to see if I can pull a few posts together. Here’s Monday’s prompt:

Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?  (Thanks to Melissa Lee of Sweetly Voiced for this topic suggestion.)

Hey, dr. wonderful. Great to see you here. There are plenty of things I wish you could see and know about my life with D. It’s not all pretty, but it’s me. Here we go.

1. I’m a few weeks away from my 33rd diaversary, and at this point in time, I’m wondering how the next 33 are going to go–and how I’m going to make it through them. In another 33 years, I’ll be 73 years old. On one hand,  I fully expect to make it there (and beyond) with few complications. On another hand, that’s a hell of a long time. It’s another lifetime. I’m already bored with all that d-maintenance takes. How am I going to make it through another 33+ years?

2. The dawn phenomenon seriously fucks with every weekday morning, and any weekend morning when I get up before 9am. Why can we not figure this thing OUT? We’ve tried slamming it with a honking basal increase from 6-9am. We’ve tried a graduated increase starting at 4am, then again at 6am, until 9am. We’ve also tried a lesser increase from 12am onward. I’ve tried not eating breakfast (BG still rises at least 50, more like 75, points in an hour). I’ve tried eating a tiny snack the second I get up. I’ve tried bolusing for breakfasts I don’t actually eat. What. The. Hell. Are we ever going to win this game? Because it’s been a long time now, and I’m sick of this. Doesn’t your medical degree, plus my brains and experience, trump my liver?

3. I don’t like low BGs. But they’re just easier to deal with – not that I LIKE dealing with them, because I don’t. Seriously. But it’s easier to grab and ingest 15 carbs, and wait 15 minutes, than it is to give a correction. And wait. And test. And wait some more. And figure all the numbers out again, just to be sure. And wait. And test. And rage bolus/stack. And wait. Some more. And test. And…yeah. That’s harder for me. I can feel my blood sugar rising, and I know if it’s more than 140. I can’t feel the lows, but that somehow makes it not as bad. The highs make me feel yucky, and they can take forever to remedy. Please know that I’m not trying to be low all the time. I just hate being high.

4. Performing. It’s something I love to do, either singing or acting or speaking in public, and it makes my BG RISE rise RISE. Sometimes as much as 100-200 points, no carbs involved! I know it’s not running marathons, and it may not seem athletic at all, but it’s serious to me. I could really use some help with this. I hate feeling the way I do at 300 while I’m supposed to be singing or giving a presentation. It’s hard to sing or speak with fuzzy mouth, sweaters on teeth, and dry throat. I don’t know how to deal with and fix it, and I don’t know how to manage it through experimentation since I can NOT go low while I’m performing.

5. I’m the same person who for most of my d-life, barely tested, had crazy high BGs, and have a really messed up relationship with food. About 3.5 years ago, I decided I wanted to get pregnant. I am honestly amazed at the way I wrapped my arms around my d-management and got my BGs under so-called “control.” The whole pregnant thing did not happen, and now here I am. I’m not sure how to keep my diabetes under “control” just for me. I don’t know why else to do this if it’s not for the higher purpose of taking control of my disease in order to keep a baby healthy. I also don’t know how to let go of the super-tight control of the trying-to-get-pregnant-lady. I have no idea what I’m supposed to do right now…but I don’t want to go back to the HbA1cs of yesteryear. I just don’t know how to do this.

What do I hope you don’t see? Not much. I don’t think you can help me unless you know what my life is like, for real. I spent way too many years feeling ashamed for the food that I binged and the blood tests I never did and the fake numbers I put in the logbooks and the exercise I didn’t sweat and the insulin I did or didn’t give…once I finally put all of that DOWN, I don’t care that you see it. In fact, I need you to see me – just as I am. I don’t do the unhealthy things as much these days, but sometimes I don’t make the healthiest choices in the world. I’m not going to hide. Don’t try to make me feel bad for what I am, and what I do. Join with me. I need your help, and I’m worth it.

p.s. if you could wait until the end of my appointment to take my blood pressure, that would be awesome. Not only do I have the whole white coat syndrome going on, but I’m always running late, cruising across the Golden Gate Bridge, frantically searching for a parking spot, and running up to your office, breathless. I bet my BP will be much closer to what it should be if you give me a few minutes to calm the hell down. Parallel parking is rude.

 

Here’s where to find all kinds of Share and Don’t Share posts!

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wish I could be…maintenance-free

May 28, 2012

I’m in such a freaking crankypants-y mood today. There’s a lot of stuff swirling around in my brain. I spent the morning doing chores around the house, and it feels like some hormones are elbowing their way to the front of the Line of Annoyance. Once there, the ever-gaining hormones keep poking me in the head. Constantly. Like a bratty little brother. I’d like to scream at them to knock it the hell off, but then I’d scare those around me in real life, so I won’t. Although those around me are probably afraid anyway, because of the way I’ve been acting today.

On this, the last day of the 3-day weekend, I vacuumed and washed the mostly hardwood and little bit of tile floors throughout the ground floor of our townhome. It’s not like it’s a huge space, so I really shouldn’t even think twice about it. And I’m glad when it’s done, for the few brief shining moments before dogs or daughter or adults get stuff on it and start the cycle again. I should be glad to be able to get into the work, get it done, and enjoy the results.

Except that lately, I’m just overwhelmed with the maintaining of everything, both diabetes-related and not. The second the last bit of laundry is done, there are more clothes in the baskets to clean. The clean dishes get put away, and there are more on the counter that need to be washed. The last square foot of floor is vacuumed and scrubbed, and the dogs come scattering through with hair and dirt and dogginess. It’s like a neverending run on the treadmill–lots of effort (sometimes), but never getting anywhere.

Add the diabetes-related chores to the list of  household chores that never end, and I am just not entirely sure where there is anything different from one day to the next. Blood test, bolus for carbs or correction, test, test, test, respond, treat low, test, test, test, exercise, deal with whatever happens due to exercise, change pump site/CGM sensor site, test, test, tell CGM to shut up, again, test, test, freak out about potential impending complications, freak out about new weird physical changes and whether or not they’re diabetes-related, test, test, stress…and so it goes. I’ve blogged about it before, too, so even that’s redundant. Nothing new.

Maintenance…

It’s a nevernending and never-certain chore, this diabetes maintenance. The only other option I see is non-maintenance, otherwise known as ignoring D intentionally or being in denial of it unintentionally, and neither of those seem like good options to me, for me. When I don’t test for several hours, and when I go on a rant of eating tons of junk food and sweets just because I feel like it and no one can stop me damn it, it doesn’t feel good. I have to fight for hours after to get my BG back down to where I feel okay. So that really doesn’t do much to help me feel less burdened from taking care of D. It’s a pain in the ass.

Truth be told, there’s not much to be happy and proud about when I’m doing all the d-maintenance stuff RIGHT, either. A lower HbA1c is great and nice and fun to look at when the test results are ready, but then what? There’s no gold star, no award, and no fun summer vacay as a result. Just get back on the treadmill and keep running, thanks. Don’t stop. Don’t slow down. Just keep going.

I think I have burned out. (I can’t stand the look of the word “burnt,” it just seems wrong.I just can’t use it. Besides, if I’m describing a negative result of having burned the candle at both ends, let’s say, then I want to use the word “burned”–it’s more active.) Not entirely sure how to fix it, how to get back into the swing of things. In a few days, hopefully things won’t seem so dire and forlorn when the hormones have lessened to some extent.

More maintenance chores: I have the annual Dr. D-eyeball appointment in a couple of weeks. Of course I’m freaking about it. And oh, look at that–I scheduled it for the day before my 32nd diaversary. Hmmm. I also requested the forms to see if I can get my medical records from 1980, when I was diagnosed with type 1 and admitted to the hospital for 13 days after coming into the ER, and from another time around 1984, when I was in the hospital for a few days with DKA after secretly refusing to give my shots for about a month or so. I’m trying to figure out if I need to go in, and if so, to what kind of dr., regarding my ongoing stint with super dry eyes and dry mouth that are driving me nuts. My mom was diagnosed with Sjogren’s syndrome a few years ago, and I’m freaked that I might have it too. Autoimmune and all. The more the merrier. Or, the seasonal allergies could just be after me worse than ever before this year…who knows.

I’m just super tired of maintaining. But there’s not much else to do…just keep going. Wish I could hire a trainer to carry the worry and do all  the maintenance business for me, just for a couple of days. I’d like to try something new, and not have to keep doing it for years and years and years. Just be able to put it down when I was tired of it. Just for a little while. That would be awesome.

At least the floor is clean. Or was for a few hours, before the dogs came back inside.


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