saturday snapshots with D

May 18, 2012

 

 

 

 

 

 

 

Check out all the other Saturday Snapshots right here!.

D-Blog Week 2012, Day 6: Back for the third year, let’s show everyone what life with diabetes looks like!  With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures.  Post as many or as few as you’d like.  Feel free to blog your thoughts on or explanations of your pictures, or leave out the written words and let the pictures speak for themselves.


DSMA blog carnival for july: diabetes tech

July 28, 2011

I’ve been procrastinating and putting off blogging for more than a month now, without any really good reason. To add some oomph with much-needed motivation to get me over the nonblogging hump, I checked out the Diabetes Social Media Advocacy (DSMA) Blog Carnival prompt for July: (Thanks, Karen at Bitter~Sweet Diabetes, for the reminder! It WAS hot-but not melted!)

What improvements or adjustments would you make to current [diabetes] technology?”

Some context: I currently am privileged to be able to own and use an insulin pump with blood glucose meter/remote (Animas One Touch Ping), and a Dexcom 7plus CGM (continuous glucose monitor). I’ve been using those 3 major d-gadgets for about a year. Before that, I was a Minimed pumper since 1994, and a One Touch meter girl since waaaaay before then. I demo’d the Minimed Revel along with the Ping before deciding which systems to purchase convince/beg my third-party administrator to approve for coverage last summer. I tote around a CalorieKing 2011 book even though I also have the CalorieKing website bookmarked on every web gadget I own.

After all that prelude, here’s my wish list for diabetes technology:

1. Artificial pancreas/closed-loop system. Yes, please! I understand, we’ve got a while more to wait for this one. In the meantime…

2. If they are separate gadgets, then insulin pumps, BG meters, and CGMs should be on speaking terms with each other, and they should all speak and understand the same language. They should work TOGETHER, since they are all part of the same system. The one I use to manage my d-life.

3. Excellent, easy-to-use, data management systems. The “systems” associated with all 3 of the devices I currently use are, to put it really bluntly, crappy. Three different kinds of crappy. How the companies manage to develop such yuck is beyond my comprehension. They’re not user-friendly. They don’t use the same standards. And of course, they don’t look the same once the 3 different data sources are downloaded. See next point for more on this craziness.

3.5 The absolutely separate and specific INANE requirements for downloading the data (“dongle,” anyone? really?!!). Claire’s hilarious and unfortunately accurate post covers the intricacies better than my exasperated eye rolls can hope to convey. All I have to say is: Wireless. Seriously.

4. In this time of All-Apps, All The Time, I wish for an app that would suck the data from the 1 insulin pump/BG meter/CGM system and display the most useful, most important data that I need to make my daily–sometimes moment-by-moment–life D-decisions. I wish that app could be accessed from any device, Apple, Android, whatever. And I wish that it wouldn’t just do a big ol’ data dump with a bunch of averages. Some data points are most useful and helpful, and I shouldn’t have to dredge and yank them out myself.

5. The BG meter/remote should be able to operate all of the insulin pump functions. For example: I should be able to track my history for boluses, total daily dose, basals, primes; review and edit my basal rates; and set temporary basal rates. It’s crazy to currently be able to see so many different functions on the meter/remote, but not the same functions I need to work the pump. Especially with the following problem I’ve experienced a lot lately:

5. With its reverse type (white on black background), the Ping pump screen is completely unreadable in the light of day. I went camping last weekend, and couldn’t see to give a bolus directly on the pump when outside (most of the day, when one is camping) or to set a temp basal (important for me when hiking, in hot sunlight, in the afternoon). Luckily, I had the meter/remote nearby, so I could at least do the bolus, but not the temp basal. Major drawback!  No device screens should use reverse type.

6. The carb counting food list integrated into the system needs to include every product available at any Trader Joe’s.

7. Glitter. Rainbows. Unicorns. Cupcakes with sprinkles. Medtronic has a good start here, but that’s just a start. The possibilities…necessities really.

8. My top wish/priority for diabetes technology: Affordability. Availability. Access. Worldwide.

This post is my July entry in the DSMA Blog Carnival.  If you’d like to participate too, you can get all of the information at http://diabetessocmed.com/2011/july-dsma-blog-carnival/



wordless wednesday: frozen fruit floes

July 27, 2011

As promised... 😉


just lime, no coconut

May 4, 2011

Today was pretty much the first day of summertime temps in our part of Northern California–about 85 degrees this afternoon(!!!), and still plenty hot this evening until the sun went down. A few minutes ago, my #bgnow was 51 mg/dl. Between my low BG and the heat, that meant it was time for my favorite summer treat: Trader Joe’s Frozen Lime Fruit Floes!

A not-very-helpful endo and similarly not-very-useful dietician who I saw a few times last summer tried to get me to quit the amazing frozen lime floes. Saying things like “You’ve got to stop eating these–they do nothing for you” is a truly wonderful way to send me straight to the store and clear out the case of all such product. Not so much with the successful there, medical folks. When it’s crazy hot and sunny, too hot for me to think or care about what the meter’s reading, and something cold and tasty with a label that says just 16 carbs per floe is sitting in front of me, I’m not going to be substituting celery stalks. That’s for sure.

In the last year, however, I have learned that it doesn’t work out well if I just hork down several of these in one sweaty sitting. Or if I enjoy one but forget to bolus (or choose not to) because you know, 16 is barely any carbs when you compare it to the ginormous frozen cupcake I COULD be eating, right? Sometimes it doesn’t even work out well if my BG is around 150 mg/dl, AND I carb count AND bolus beforehand. So no thanks to last summer’s endo/dietician team, but I have learned that these gorgeous examples of lime heaven can affect me, and I need to try to manage that if I’m going to partake in these lovely things.

So I eat them when I’m lower, low, or really low and it’s super hot. To get really precise, I love to have one if I’m 100 mg/dl or lower and it’s 80 degrees or higher; I can usually deal pretty well then. But there is no specific number to express how much I love them–all I can say is YUM, and point you to the nearest Trader Joe’s to get your own to enjoy!

These floes are a beautiful thing! Sweet but not overly sweet, solid but not rock hard, frosty and pretty light green, and just the right amount of lime…yum. yum. yum.

Of course, I didn’t have a CGM last summer, so I couldn’t see exactly what the floes were doing.  Now I use a CGM, and Dex is currently completely spazzing out at 189, but when I just tested again, BG was 109 mg/dl. Sigh. Looks like the floes and I have some more experimenting to do this summer. At least we’ll have a good time gathering the data to do the analyses…


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